What’s important when caring for a loved one? Population-based preference weights for the Adult Social Care Outcomes Toolkit for informal carers (ASCOT-Carer) for Austria

Trukeschitz, Birgit ORCID: https://orcid.org/0000-0002-2307-4200 and Hajji, Assma and Batchelder, Laurie and Saloniki, Eirini and Linnosmaa, Ismo and Malley, Juliette (2021) What’s important when caring for a loved one? Population-based preference weights for the Adult Social Care Outcomes Toolkit for informal carers (ASCOT-Carer) for Austria. Quality of Life Research. ISSN 0962-9343

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Abstract

Purpose: The Adult Social Care Outcomes Toolkit for informal carers (ASCOT-Carer) can be used to assess long-term care-related quality of life (LTC-QoL) of adult informal carers of persons using LTC services. The ASCOT-Carer instrument has been translated into several languages, but preference weights reflecting the relative importance of different outcome states are only available for England so far. In this paper, we estimated preference weights for the German version of the ASCOT-Carer for Austria and investigated the value people place on different QoL-outcome states. Methods: We used data from a best–worst scaling (BWS) experiment and estimated a scale-adjusted multinomial logit (S-MNL) model to elicit preference weights for the ASCOT-Carer domain-levels. Data were collected using an online survey of the Austrian general population (n = 1001). Results: Top levels in the domains of ‘Space and time to be yourself’, ‘Occupation’ and ‘Control over daily life’ were perceived as providing the highest utility, and states with high needs in the same domains seen as particularly undesirable. ‘Personal safety’ was the only domain where levels were roughly equidistant. In all other domains, the difference between the top two levels (‘ideal state’ and ‘no needs’) was very small. Conclusion: The paper provides preference weights for the German version of ASCOT-Carer to be used in Austrian populations. Furthermore, the results give insight into which LTC-QoL-outcomes are seen as particularly (un)desirable, and may therefore help to better tailor services directed at informal carers and the persons they care for.

Item Type: Article
Additional Information: Open Access funding provided by Vienna University of Economics and Business (WU). This publication reports on results of the EXCELC (Exploring Comparative Effectiveness and Efficiency of Long-term Care) project, which was funded by the NORFACE Welfare State Futures programme (Grant Number 462-14-160). In addition, the Austrian contribution to this project was co-funded by the Austrian Science Fund (FWF) (Project Number I 2252-G16) and the Vienna Social Fund (FSW - Fonds Soziales Wien).
Keywords: Caregiving, Long-term care, Value, Health-related quality of life, Best–worst experiment
Divisions: Forschungsinstitute > Altersökonomie
Version of the Document: Published
Depositing User: ePub Administrator
Date Deposited: 19 Feb 2021 14:27
Last Modified: 23 Feb 2021 09:28
Related URLs:
FIDES Link: https://bach.wu.ac.at/d/research/results/98801/
URI: https://epub.wu.ac.at/id/eprint/8005

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