Carer Social Care-Related Quality of Life Outcomes: Estimating English Preference Weights for the Adult Social Care Outcomes Toolkit for Carers

Batchelder, Laurie and Malley, Juliette and Burge, Peter and Lu, Hui and Saloniki, Eirini-Christina and Linnosmaa, Ismo and Trukeschitz, Birgit and Forder, Julien (2019) Carer Social Care-Related Quality of Life Outcomes: Estimating English Preference Weights for the Adult Social Care Outcomes Toolkit for Carers. Value in Health, 22 (12). pp. 1427-1444. ISSN 1098-3015

Available under License Creative Commons: Attribution-NonCommercial-NoDerivatives 4.0 International (CC BY-NC-ND 4.0).

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Background: There is increasing interest in assessing the effects of interventions on older people, people with long-term conditions and their informal carers for use in economic evaluation. The Adult Social Care Outcomes Toolkit for Carers (ASCOT-Carer) is a measure that specifically assesses the impact of social care services on informal carers. To date, the ASCOT-Carer has not been preference-weighted. Objectives: To estimate preference-based index values for the English version of the ASCOT-Carer from the general population in England. Methods: The ASCOT-Carer consists of 7 domains, each reflecting aspects of social care-related quality of life in informal carers. Preferences for the ASCOT-Carer social care-related quality of life states were estimated using a best–worst scaling exercise in an online survey. The survey was administered to a sample of the general adult population in England (n = 1000). Participants were asked to put themselves into the hypothetical state of being an informal carer and indicate which attribute they thought was the best (first and second) and worst (first and second) from a profile list of 7 attributes reflecting the 7 domains, each ranging at a different level (1-4). Multinomial logit regression was used to analyze the data and estimate preference weights for the ASCOT-Carer measure. Results: The most valued aspect by English participants was the "occupation" attribute at its highest level. Results further showed participants rated having no control over their daily life as the lowest attribute-level of all those presented. The position of the 7 attributes influenced participants’ best and worst choices, and there was evidence of both scale and taste heterogeneity on preferences. Conclusion: This study has established a set of preference-based index values for the ASCOT-Carer in England derived from the best–worst scaling exercise that can be used for economic evaluation of interventions on older individuals and their informal carers.

Item Type: Article
Additional Information: This project was funded by the NORFACE Welfare State Futures program under grant number 462-14-160 . In addition, the Austrian contribution to this project was cofunded by the Austrian Science Fund (FWF, project number I 2252-G16) and the Vienna Social Fund (FSW). The Finnish contribution to this project was co-funded by the National Institute for Health and Welfare. The ASCOT measure is disclosed in full herein but ordinarily should not be used for any purposes without the appropriate permissions of the ASCOT team and the copyright holder, the University of Kent. Please visit or email to inquire about permissions.
Keywords: ASCOT questionnaire, best–worst scaling, informal care, preferences
Divisions: Forschungsinstitute > Altersökonomie
Version of the Document: Published
Depositing User: Gertraud Novotny
Date Deposited: 26 Nov 2019 12:34
Last Modified: 03 Dec 2019 09:36
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